Saving lives by connecting people to lifesaving information looks different for different diseases and varies in each country. But the core consists of a few basic principles.

Access to Internet

To access lifesaving information people need to be connected with the internet.

Technical solution

To connect people to lifesaving information from other people like them by using a digital network solution.

Educating people

To impact we implement & teach people how it works and what they can do as local HEROs

Mobile App

SocialGenomics network is accessible through a mobile app solutions.

Community Building

The more people are connected on a global scale the more lifesaving information becomes accessible.

Highly Friendly

It’s super important that people are empowered to use the technical solutions.

Data Security

Security is secured through proven technology and completely GDPR proof.


User privacy is at the centre of everything we do – and given you the tools to control your data.

Clinical Safety

We ensure clinical safety by exceeding industry and legal standards.

Watch the video to learn how SocialGenomics works


Meet Nikki – One of our HEROES.

She is empowering people with Usher Syndrome globally.