How access will change Healthcare
Entering a new era of healthcare by realizing the true promise of personalised medicine: No more preventable diseases. Soon patients will realize that they are unique and that their treatment should be as unique as they are.1
- Access to genetic data will positively impact the lives of more than a billion people. Providing us access to knowledge to protect us against terrible diseases, provide better and faster disease detection and to provide us the best medication and treatment according to our needs. Worldwide this will save trillions of dollars spent on wrong therapies – money that can be better utilized.2,3
- To accelerate drug and treatment discovery we need large cohorts of people with a certain genetic profile. Currently researchers cannot find the people. As genetic data is locked up in fragmented silos of third parties. A problem that would be solved if people would have access to their data and be able to share their data with researchers.4,5,6
- 80% of rare genetic diseases do not have a treatment. Consider, there are already more than 425 Million people living with a rare genetic disease today. This is 7% of the world’s total population, of which7, 45% of these people have not even been diagnosed by a physician yet. In most cases, local hospitals do not ‘know their case’. If left unnoticed both their health and their children, our future, will face a very negative future.
- Finding a cure to fight cancer. Cancer is by nature a genetic disease. In many ways, it is the poster child for a disease that has used personalized medicine strategies. It has used them in everything from risk assessment in healthy people — from screening, diagnosis, and prognosis — to selecting therapies based on genetics and the biology of the tumor.8,9 Imagine what would happen once these insights would be combined. By owning our genetic data, knowledge can be integrated into clinical practice.
- Fighting deadly genetic diseases in less developed countries: Such as sickle cell disease has the highest prevalence in Sub-Saharan Africa- 300,000 affected babies are annually born. HIV/AIDS is another area where knowledge about genetics offers great progression: taking AIDS from a death sentence to a chronic condition. As the virus mutates differently in each patient. Researchers can now understand the viral load and analyze it, then prescribe the right cocktail of medicine to treat it.10
- Using this knowledge, we can prevent many diseases from occurring.11,12 For example: 1 in 250 people in the population are suffering from a genetic heart mutation which can cause life threatening arrhythmias leading to heart failure and sudden death before the age of 55. What if we could use our genetic data to prevent this?
- Using genetic data to obtain the best treatment with the least side-effects. Did you know that a lot of medication would not work if they don’t match your genetic profile?
- Drastically reduce healthcare costs. An estimated $30 billion - $110 billion every year could be saved by using genetic data to select the drug that precisely matches the genetic fingerprint of the patient.13